Living with Fibro

Living With Fibromyalgia And Difficulty Speaking

Fibromyalgia is a disease that has many symptoms and some of them can be confusing for people. So in case you were thinking that it only affects the energy levels of the body and that the only problem is muscle and tissue pain, you were wrong.

This kind of disease can affect almost any aspect of a person’s life and it is time we educate ourselves on it and give more understanding to people who suffer from it.

The first symptoms that usually come to mind are exhaustion and pain in every muscle, but these are not the only symptoms of fibromyalgia.

Fibromyalgia is different for each patient who suffers from it and it affects every person in some different way. For example daytime fatigue and exhaustion will be a major problem for a person who has an interrupted sleep cycle and has fibromyalgia as well.

And this will usually result in depression and increased muscle pain. But just because this is the most common symptom of this disease does not mean that it is the only one we should look at and consider.

There are numerous others that a person who suffers from fibromyalgia battles with every day. Most of the time there are all intertwined with one another and affect each other.

So with that line of thought if there is a way to help with one symptom it will result in helping with the others as well.

Fibromyalgia often leaves the person feeling fatigued and mentally confused. Many patients claim that it feels as if they have a fog setting over their brain.

From 50 to 70 percent of the patients have chronic headaches and migraines, and they happen at least two times per week.

Imagine living a normal life with that kind of condition. This leaves the patient exhausten on a physical as well on a mental level.

One of the symptoms that may have been overlooked is difficulty in speaking when you have fibromyalgia.

Having trouble with language and having trouble speaking can be very irritating and frustrating, especially when we live in a modern society where you are in a constant need to communicate your thought clearly and where you are constantly surrounded with other people who expect of you to speak with ease and clarity.

Before your doctor diagnoses difficulty in speaking to fibromyalgia it should be checked that there are no underlying issues with the throat, the ears or the nose.

The nerve receptors of the person who suffers from fibromyalgia can get overwhelmed by the number of information as the pain receptors are constantly being bombarded by information.

The pain signals are constant and too much stimuli from different sources can confuse the brain and lead to speech problems.

People suffering from fibromyalgia find it a common problem to speak clear thoughts or remember certain words sometimes. It may even result in trouble with writing or understanding language.

Researches are not yet sure to why exactly fibromyalgia causes these language problems, because dysphasia and aphasia are linked to brain injury or degeneration, such as when suffering from a stroke.

And for now there is no evidence that fibromyalgia can cause brain tissue damage or degeneration.

We may hope that in time some link between the two will be discovered and that a cure will be found, but before that we must think of ways to make life easier for a person who suffers from fibromyalgia.

People who suffer from the disease claim that in most cases the more tired and exhausted they are the more difficult to speak it gets for them.

They find themselves searching for the right word and it simply doesn’t come to mind. Or the person finds themselves with saying a word that has no correlation with the conversion or their train of thought.

This is something that can be very frustrating when it first starts happening and it is good to find a coping mechanism to help.

Fibromyalgia And Difficulty Speaking

It is important not to stress too much about it as stress leads to less sleep and more fatigue and exhaustion.

Try to keep a positive outlook on the whole problem and not blame yourself when it happens. Give yourself a couple of seconds, laugh at it if you can and then move on.

Some days this will not happen and on some days it will but the there are ways you can help yourself.

If you find that the more rested you are the rearer the happens then try to find ways to get a better and more regular sleep.

Make a plan of going to bed each night at the same time and get up in the morning at the same time and see if this gives you more energy.

Or if you find that it is easier for you to write than to speak for a time then communicate with the people via text or email for a while. Whichever way you find of getting yourself relief is a good way.

Because speech difficulties can be very frustrating. They can be unpredictable and people who don’t know you can get confused and impatient.

So make sure that you explain to people that this is a symptom of a disease that you cannot control and that it does not define who you are as a person. And say this to yourself as well.

We just saw that fibromyalgia has many symptoms and that affects almost every aspect of a person’s life. But it is a disease that can be fought against and the patient’s condition can improve over time.

Considering how all the symptoms are linked together speech trouble and language difficulty can result in more stress, anxiety and exhaustion if you don’t know how to help yourself. So find little ways every day to make yourself feel better if you can.

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Living with Fibro


  • this is great that its a symptom i usually find that finding the right word and then to try and say it at the same time sometimes really frustrating 🙁 also is it linked with this other scarey thing that happens to me is that when im eating or trying to drink or even take a small tablet i cant remember how to swollow my brain just wont let me? i have to really concentrate or get rid of it and try start again , im getting this more and more

    • You are not alone I this I also find that now and again its as if I forget how to swallow there have been a few times where I’ve burnt my throat due to having hot liquid stuck in my throat and you do get a fright with this

    • It’s so nice to know there are others having difficulty with the swallowing too! It’s like when I get the pills in my mouth I can’t figure out how to swallow and they start melting, it’s terrible! I never understood why this happened but thanks for making me feel not so alone. 😊

  • I have began to have my speech come out slow like I have a speech impediment, and on top of that lose words. Very difficult to deal with and impossible to work. Even more so when I’m in alot of pain. I have good days and bad. More bad than good anymore.

    • I have got a similar problem in that I know what I am trying to say but it seems to come out slowly like my brain and my mouth are not synced together. I know I am doing it but can’t seem to help it.

      • I started having that happen to me didn’t understand what was going on, now I understand. It happens when I am having a rough day and night, sleep is very hard. In the morning I see it happening.

  • For me its embarrassing and exhausting. I’m reasonably intelligent and have an above average vocabulary. So, when I can’t access an everyday word like “knife”, it drives me crazy. I know what it is, I know the name. I can talk my way around it “the thing you use to slice tomatoes.” But I can’t seem to get the word to come out of my mouth. It’s definitely related to Fibro fog and how good or bad I’m feeling on any given day. It’s not typically so bad in front of family, but I constantly think about how embarrassing it is when it happens in front of other people. I’d love to know why it happens.

    • Karen – My name is Karen too and I have the same problem! It is so embarrassing and I feel your frustration! What can we do about it?

  • Have issues swallowing not just tablets , food too ! I forget totally what something is and just say ..oh you know the thingamebob. ..I get stressed that people don’t know what I’m on about , but I know . It is worse the more tired I am ….fibro is secondary to the A.S , I also suffer from . Debilitating and frustrating! !

  • I have the same problem with speech and swallowing,sometimes I choke on my Vitamins in the morning,or I feel my self holding them in my mouth until I can get my brain or my throat to work. I have IC too,sometimes when I need to pee,and with IC that’s about every hour,I can’t go.I can’t get the message down to my bladder. I recently I had a stroke,I didn’t even realize that what it was because I have all these problems will my fibromyalgia. I have vision problems too. Lights flashing in one eye or another.Blurry vision that comes and goes.So many different things it hard to tell what my fibromyalgia and what’s something else.I have to go get an MRI,I”m not convinced that I had stroke yet.I didn’t get dizzy or black out. Just a little blurry vision for a second,then I was having difficulty speak,it was very bad my words were so slurred .I couldn’t get my tongue to work,it felt like when my fibromyalgia is acting up,I couldn’t tell the difference. The doctor was up set with me ,telling me I should have gone to the ER,I told him how am I supposed to tell the difference.I even have problems with my balance.

  • I live daily with total brain fog. Dont ask me what i did yesterday, nor last week. I can remember doing things but not when, what day, or time it was…. I get total memory loss when conversations are being had, I know that I have the knowledge and information but cant remember what it is to say it. I start to speak with a suggestion (example) and I cant give the information. I cant remember names, places, events, movies titles, and forget appointments. I am good with numbers, I can remember my bank account details my lisence number and some phone numbers. Dont know why I can be so good with numbers but not anything else….. is very frustrating and I try to apologise in advance and at the time to people and explain that I have issues remembering things. People normally tell me that I am stressed and to chill… but I am chilled and not stressed, just embarrassed and frustrated that I cant pass on the information that I would like to. I am stimulated to speak but the memory of what I want to say is not there….

    • Hi I’m the same didn’t know which colour toothbrush was mine and tried to use my daughters laptop in the screen n wondered why didn’t work it’s awfull

  • Brain fog can be a symptom of many diseases and disorders, some serious and others fatal. A doctor should do a barrage of tests to eliminate vascular events and dangerous metabolic or neurological disorders before he/she settles on Fibromyalgia as a diagnosis. I was misdiagnosed with Fibromyalgia many years ago, but responded very negatively to the traditional drug therapy. I nearly died before I was correctly diagnosed with pernicious anemia and was prescribed vitamin B-12 injections without which I cannot survive.

  • This is very good information, one I haven’t seen any thing about this .I have it all I have a hard time talking right.And my skin is driving me more nuts.It all hits me! Thank you I’m feeling not very good just went in surg.and Dr.s put block in neck to help pain and problems! Been one day so far ok! Prayers

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